To those of you who've wondered where I've been for the past few weeks, I've r

eturned from a vacation to New York, the main purpose of which was to serve as "best man" at my father's wedding. And as the shirt I'm wearing clearly states, "I'm not dead yet". Before you think that I've dwelt on this anti-cancer mantra too much, the shirt is from the Broadway stage production of "Spamalot" - the stage version of the film "Monty Python and the Holy Grail". I saw the shirt as we went into the theatre and I knew immediately that I had to have it. More about the wedding and show later.
It was really quite nice to be "off cancer" for a few weeks. Sure, there was quite a bit of conversation about my cancer with friends and family that I haven't seen in some time (or new family that I was just meeting for the first time), but it was nice to get a few weeks off from treatment. I love my "family" of caregivers at the hospital, and as much as I missed them (you do get kind of attached to a group of people who are trying to save your life), it was nice to give them a break too. It took a little while to shake the nasty skin rash and itching from the Erbitux, but the last week off before resuming treatment was the best vacation ever. I started to feel like my old self and had more energy (enough to hike a brisk 30 New York city blocks from the Carnegie Deli on 55th St. to Penn Station on 33rd St!), slept better, and generally just felt a lot better. The therapeutic value of taking a little break was the best treatment I've had in over a year, and was a little teaser on what the "new normal" will be like when I finish this whole thing up some day.
So, was skipping a few weeks of treatment worth it? Did I worry about losing ground and giving the beast inside a new start on me? It was definitely worth it, and from what I can tell from the PET/CT scan I had on Tuesday, the beast took the time off too. When I went in to discuss the new scans with Dr. Gold (who really deserves a nice pastrami sandwich from the Carnegie Deli), he was all smiles - no evidence of progression, and although no obvious shrinkage in the tumors, they've become harder to identify but are still showing some activity. So, yes it was definitely worth it.
The doc wasn't willing to let me extend the vacation from chemo any longer though (I did ask), and so I started back with another full round of treatment on Thursday - vacation officially over. A little extra fun this time - with nothing to run through my chemo port and catheter for a few weeks, it clogged and had to be cleaned out with an enzyme. So one extra poke in the left arm to get blood samples for the lab work, and one extra poke in the right arm to start administering the chemo while we waited for the enzyme to clean out the chemo port catheter (thanks to nurse Jennifer B who realized that we'd be there all day if we had to wait for the port to clear, and starting the treatments via the arm). And now the progression of side effects has started again - fatigue, queasy stomach, no sleep for a few days, sore bones from the white cell booster shot in the belly....back to the "old normal" again for a while. Sigh. But it was still nice to have that little break and the teaser for "new normal" to focus on.
We flew to New York on July 23rd and had activities to cover almost every day we were there. Thanks to Mike and Jean for being such fantastic hosts during our visit. Bro' Mike is the master at the barbecue smoker and treated us with smoked sausage, pork ribs and turkey, which lasted us for days. It was also good to see old friend and college roomate John Laverty, who braved the drive up from southern New Jersey. We went to Manhattan to roam the city, visit old homesteads, Ground Zero (which is a flurry of construction activity now), and see Spamalot. If you are a Monty Python fan and the touring company of Spamalot will be in your city (hint to Seattle area residents - it's here in October!), go see it by all means - I've never laughed so hard in my life. We got a chance to get all of my brothers and sister and all our kids to the beach and enjoy a day of sun, sand, and surf - I can still body-surf!
The wedding was nice - I've told people that it's not often that you get to marry your parents off. My siblings and I did get into a little mischief and managed to slip out during the reception and decorate my dad's car and house - they'll be finding plastic bugs and critters for months. Sorry to my Dad and all the guests who waited for us to return to the reception while we were out "redecorating". A good time was had by all at the reception with some fairly impressive dancing by my Dad's friends.
We finished up our visit with a graduation party for my sister's daughter and another trip into Manhattan before boarding a train to head back to Seattle. The train ride home took three and a half days, with a change of in trains in Chicago. We got sleeper cars so that we could stretch out and get some sleep - the accomodations were a little tight but way more comfortable than having to do the trip in coach seats. The food in the dining car was pretty good and the scenery from the sightseeing/lounge car very relaxing. You get to see some gritty industrial rust belt scenery along Lake Erie and Michigan, and then more pastoral scenes beyond Minneapolis with plenty of wheat through North Dakota and Montana. Glacier National Park was beautiful, although the eastern side of the park was experiencing a number of serious forest fires as we passed through and we could actually see flames on the ridgelines after dark. Our final morning on the train started with sunrise in Wenatchee WA and breakfast as we went under the Cascades in an eight mile long tunnel. The grand finale of the train adventure was a foggy trip along the Puget Sound from Everett to Seattle, and home at last.
To see a few photos of our trip, point your browser to the link below. The best way to view the pictures is to scroll part way down the opening screen and click on the "view as slideshow" on the right side of the screen, and a slideshow will start. The pictures sort of ended up in reverse order of how they were shot, so the end of the trip is the beginning of the slideshow. I'll get it right next time.
http://s195.photobucket.com/albums/z85/haydnprong/